The Thalassaemia International Federation (TIF) has launched a surveillance project in conjunction with the Open University of Cyprus (OUC) to better understand the health and social care services provided in your country, with a focus on chronic patients such as those with thalassaemia. The TIF and the OUC have created a short survey questionnaire to collect crucial information on various characteristics of each nation linked to thalassaemia patient treatment, including insurance coverage, social services, and key public health indicators.
TIF’s ultimate goal is to be able to better identify and assess the level of unmet needs for the patients it represents, as well as to collaborate closely with all relevant stakeholders, including patients/families, health care professionals, and, most importantly, competent health and social care authorities, in order to promote improvements in the context of National Programmes and associated Strategies.
The questionnaire gathers Patients views on the healthcare services they receive in their country. To encourage participation, the survey has been translated into 24 languages:
Source: Thalassaemia International Federation (https://tinyurl.com/s65syzc9)